Living, Laughing, Loving

Life as I see it. Thoughts, events & random musings.

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Appt with Dr. C and The Student Doctor

Appt with Dr. C and The Student Doctor

Yesterday I had an appointment with Dr. C, my Primary Care Physician. This appointment took the place of an appointment that was scheduled for later in the month as a follow-up for my Chronic Illnesses and was meant to touch base over notes from my Rheumatologist, update him on where things stood there, and to start the process of getting my immunizations updated in preparation of starting Imuran…

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Filed under antiphospholipid syndrome anxiety APLS appointment aps autoimmune autoimmunity blood clotting disorder but you don&039;t look sick chronic illness Chronic Illnesses chronic pain doctors hughes syndrome invisible illness lupie lupies lupus primary care physician PTSD Rheumatology SLE spoonie spoonies Systemic Lupus Erythematosus

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Why I blog?

I thought about setting up a blog long before I actually took the plunge and did so. I have several reasons I wanted to start this blog. 

Here are my Top 3 Reasons:

  1. Share my Story with my Chronic Illnesses
  2. Self-Therapy
  3. Find Others to Relate to.

I also have a few short term goals with my blog currently:

  1. Reach others going through similar illnesses and help them by sharing my story, I would like…

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Filed under blogging 201 blogging university

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First dose of prednisone. Starting at 10mg and hopefully this will do the trick if not I’ll take 20mg tomorrow if that doesn’t work 30mg the next day and then step my way backdown from there. I have had a mild reaction to prednisone a decade ago so my doctor also sent me home with anti-nausea meds to combat my reaction should it happen again. I will get out of this flare!! Theory is it was intensified by the vaccines I got yesterday. I’m to call my rheumy if I’m not improving by the end of the day tomorrow or first thing Thursday.  #lupus #lupusflare #lupusproblems #lupie #invisibleillness #butyoudotlooksick #prednisone #steriods #chronicillness #spoonie #antiphospholipidsyndrome #hughessyndrome

First dose of prednisone. Starting at 10mg and hopefully this will do the trick if not I’ll take 20mg tomorrow if that doesn’t work 30mg the next day and then step my way backdown from there. I have had a mild reaction to prednisone a decade ago so my doctor also sent me home with anti-nausea meds to combat my reaction should it happen again. I will get out of this flare!! Theory is it was intensified by the vaccines I got yesterday. I’m to call my rheumy if I’m not improving by the end of the day tomorrow or first thing Thursday. #lupus #lupusflare #lupusproblems #lupie #invisibleillness #butyoudotlooksick #prednisone #steriods #chronicillness #spoonie #antiphospholipidsyndrome #hughessyndrome

Filed under lupie lupus prednisone spoonie invisibleillness butyoudotlooksick steriods lupusproblems hughessyndrome antiphospholipidsyndrome lupusflare chronicillness

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You know you have lupus when your doctor starts prescribing things you are mildly allergic to because they are the things that help you get through a flare. #lupus #lupusflare #lupusproblems #lupie #lupies #spoonies #spoonie #chronicillness #butyoudotlooksick #idotoday #alwaysatthedoctors #prednisone #steriods #invisibleillness #antiphospholipidsyndrome #aps

You know you have lupus when your doctor starts prescribing things you are mildly allergic to because they are the things that help you get through a flare. #lupus #lupusflare #lupusproblems #lupie #lupies #spoonies #spoonie #chronicillness #butyoudotlooksick #idotoday #alwaysatthedoctors #prednisone #steriods #invisibleillness #antiphospholipidsyndrome #aps

Filed under lupie lupus aps idotoday spoonie steriods butyoudotlooksick invisibleillness lupusproblems alwaysatthedoctors antiphospholipidsyndrome lupusflare spoonies lupies chronicillness prednisone

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Tonight and Thursday’s dose of Warfarin. First time I’ve had to go up to 17.5mg. If you do the math over the week though it’s really only 15.7mg a night. A slight increase to hopefully bump my 2.5 INR back up to to the 3-3.5 range Dr. C wants me in. We think the fall in my INR is because of my flare as it tends to dip when I am flaring. Hopefully that means I will be back on my normal 15mg daily dose next week. #antiphospholipidsyndrome #aps #hughessyndrome #anticoagulant #warfarin #itakealotofmeds #chronicillness #butyoudotlooksick #spoonie #spoonies #lupus

Tonight and Thursday’s dose of Warfarin. First time I’ve had to go up to 17.5mg. If you do the math over the week though it’s really only 15.7mg a night. A slight increase to hopefully bump my 2.5 INR back up to to the 3-3.5 range Dr. C wants me in. We think the fall in my INR is because of my flare as it tends to dip when I am flaring. Hopefully that means I will be back on my normal 15mg daily dose next week. #antiphospholipidsyndrome #aps #hughessyndrome #anticoagulant #warfarin #itakealotofmeds #chronicillness #butyoudotlooksick #spoonie #spoonies #lupus

Filed under lupus spoonie aps warfarin anticoagulant butyoudotlooksick antiphospholipidsyndrome hughessyndrome spoonies itakealotofmeds chronicillness

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The Last week in Images from Instagram

The Last week in Images from Instagram

Purple Iris About To Bloom 4/6

Dark Purple Tulip About To Bloom 4/6

Purple Iris in Bloom 4/7

My cat Zazzle 4/7

INR Test Day 4/8

Azalea Bloom 4/8

Dr. D and I 4/9

Father In Law Bought Me a Laptop! 4/9

Timber Waiting for Doug To Get Up 4/10

Tulip in Full Bloom 4/10

Zazzle Keeping Me Company While I Write 4/11

Doug and Timber 4/11

Surviving Tree Mating Season! 4/12

Ball of Zazzle. (Just…

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