Living, Laughing, Loving

Life as I see it. Thoughts, events & random musings.

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The Day Life Changed

The Day Life Changed

I stood in this spot, 9 months ago. I was there with Doug, we were installing vinyl graphics on the window. These vinyl graphics to be exact:

As I stood and watched as he masterfully applied the graphics to the window, I was struck with dizziness, at the time I thought it was low blood sugar. Later I would realize it was the my body alerting me that there was something going wrong. It was a…

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Filed under antiphospholipid syndrome anxiety chronic illness lupus PTSD zero to hero

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One of our favorite trails at Reedy Creek Park. Though we usually end up lost and wondering around. Haha. @wuggied and I went walking this morning. :)

One of our favorite trails at Reedy Creek Park. Though we usually end up lost and wondering around. Haha. @wuggied and I went walking this morning. :)

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An Open Thank You Letter to Dr. C

Dr C,

When I think back to our first appointment, you asked me ‘Why Us?’ I knew I didn’t have time to tell you the full story,  I only told you the short important parts. I had known for two weeks I had to find a new PCP.  When I first found out I was devastated. Dr. D had been my doctor for the better part of 30 years. Yes there was a gap in there when I thought, like many 20-something year olds…

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To The newly diagnosed Chronically Ill

To The newly diagnosed Chronically Ill

Dear Newly Diagnosed:

I know it’s scary right now. I’ve been there. I don’t know the specifics of your situation, nor do you know those of mine. That’s not important right now. I want to share with you a few things I wish I had of had someone say to me at the beginning of my journey. I’m just a few months in, still at the beginning, but when I look back, I realize I’ve made strides from where I…

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Buckle-Up Folks!

I’m feeling much better after a few days on Prednisone, and in fact yesterday took my last dose of it.  I touched base with my Rheumatologist, Dr. L, like Dr. C asked me to do on Wednesday.   His nurse called back Thursday morning  with his recommendations and what he wanted to me do. My results from the last round of testing had also came back, I’m cleared to begin Imuran. Except, I’ll be…

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Filed under antiphospholipid syndrome chronic illness Imuran lupus Warfarin