Living, Laughing, Loving

Life as I see it. Thoughts, events & random musings.

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Just picked up my new med. Imuran, rather nervous about starting this med. when I talked to the nurse she said to start it the day I picked it up, makes it hard to take it in the morning being I couldn’t pick it up until after 4pm. Lol ah well I’ll get it eventually moved to where I’m taking it in the mornings. :) #imuran #lupus #antiphospholipidsyndrome #hughessyndrome #chronicillness #invisibleillness #lupie

Just picked up my new med. Imuran, rather nervous about starting this med. when I talked to the nurse she said to start it the day I picked it up, makes it hard to take it in the morning being I couldn’t pick it up until after 4pm. Lol ah well I’ll get it eventually moved to where I’m taking it in the mornings. :) #imuran #lupus #antiphospholipidsyndrome #hughessyndrome #chronicillness #invisibleillness #lupie

Filed under lupie lupus imuran invisibleillness antiphospholipidsyndrome hughessyndrome chronicillness

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Theives

Theives http://wp.me/s4uJB1-theives

Thieves

Swift like thieves in the night,

I don’t know if I can endure this fight

You have to keep going they all say,

But it’s not their life that changed that day.

So many doctors, so many pills,

Tired of fighting all the uphills.

They say someday it will get better,

One doctor writes another doctor a letter.

Aps and Lupus, my foes for life,

Some day the words will say, she was a good wife.

Th…

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Filed under antiphospholipid syndrome DPchallenge lupus

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Why I am here.

Why I am here.

I have journaled for as long as I can remember. It’s never been a continuous thing though. There are long parts of my life that go undocumented and there isn’t a record of it, that is in any concise easy to follow medium. There are bits and pieces of it every. I like to write though, and I have over the years became pretty good at various forms of the art.

When I became sick last year, I started…

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Filed under antiphospholipid syndrome anxiety APLS aps autoimmune autoimmunity blood clotting disorder but you don&039;t look sick chronic illness Chronic Illnesses hughes syndrome invisible illness lupie lupies lupus Rheumatology SLE spoonie spoonies Systemic Lupus Erythematosus why i am here writing zerotohero

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The unexpected Reactions to Vaccines

The unexpected Reactions to Vaccines

Tuesday morning I started my day thinking everything was going to be okay. Around 11:15 I started having rapid fire migraine auras and it became evident that I was having a reaction to something. At the time I thought it may be the nasal spray Dr. C prescribed. I had just taken my dose and they started almost as soon as I took it. After the 4th one started in just a short few minutes I had his…

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Filed under antiphospholipid syndrome APLS appointment aps autoimmune autoimmunity blood clotting disorder but you don&039;t look sick chronic illness Chronic Illnesses chronic pain hughes syndrome invisible illness lupie lupies lupus Rheumatology SLE spoonie spoonies Systemic Lupus Erythematosus